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Diagnosis components
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Information to the patient and the relatives
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The goal of getting a diagnosis is to eliminate any other possible condition (reversible or irreversible) that could be creating dementia-like symptoms. For instance, it is important to make a distinction between dementia and depression. Both conditions are associated with impairments of thinking ability (including memory difficulties) and with diminished interest in activities (including lack of initiative). Both in dementia and depression, the symptoms can be disruptive to daily activity performance. Moreover, depression is more common than dementia in older people. Ruling out depression is an important part of the diagnosis. Likewise, distinguishing dementia from the mild normal cognitive decline of advanced age is also critical.
Approaching diagnosis and treatment with an interdisciplinary team is a better method than relying on a single physician, although such a team may not always be available outside of metropolitan areas with large research and teaching hospitals. Such a team may include a geriatrician (i.e., a physician specialised in working with older people), a neurologist (i.e., a physician specialised in diseases of the nervous system), a psychiatrist (i.e., a doctor specialised in mood and behavioural disorders), a neuropsychologist (i.e., a doctor who can perform testing to identify the nature and level of cognitive symptoms), and a social worker (i.e., a social services professional who can link individuals and families to community services).
Getting an appropriate diagnosis is crucial for making the right treatment decisions.
There are several components in a diagnostic workup, including:
Previously, Alzheimer’s Disease could only be definitively identified through autopsy. There was no available test or procedure to identify this disease while the patient was still alive. Currently, scientists are working on imaging procedures (providing information about the structure and function of the brain) that allow using brain scans and computers to aid in the diagnosis. However, as this kind of technology is relatively new, using a battery of tests is still the accepted procedure.
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Information to the patient and the relatives
It is important within the diagnostic framework that the relatives are well informed by the physician about the possible causes of the dementia and about the test results in order to obtain a satisfactory impression about the steps which have been undertaken.
Everybody has the right to be informed about medical diagnoses, even if the diagnosis is hard to cope with. This might enable the patient to decide how to spend his/her time and to make his/her own decisions for the future. There are varied opinions in medical circles about disclosure of the diagnosis of dementia. Disclosing a diagnosis should always be followed by joint discussions about the next steps to be undertaken. The current point of view is that every patient, according to the stage of illness and to their personality, has the right to know but also the right not to know. This results in a step by step procedure for the information process. The patient is given part of the information in a way he can understand and he is asked if he wants to know more. Informing the relatives almost always needs prior consent of the patient.